Rob and I had an absolutely AWESOME time at the Angelman Syndrome Conference in St.Louis. Thank you to my mom, Aunt Dar, and Aunt Deb for the enormous task of watching the boys for us while we were gone. Thank you to our church families at IBC, HPCC and Wildwood for your financial support, prayer support, and meals! And thank you to all our friends for your support and prayers. We learned so much about ourselves as parents/caregivers, and we learned a TON about Chance. We believe he is so much more capable than we initially thought and we're excited to see how his life unfolds. We were encouraged by the hundreds of families and angels we met there. It was really emotional for us to meet other angels. Rob and I also enjoyed some LONG overdue alone time. We hope to make the trip to the conference every two years to continue to learn, but more importantly to see our new extended family!During on of our lunch breaks, Rob did this crazy trampoline thing in the mall. He was a bit scared at first, but he settled in and was jumping REALLY high!
The next picture is our hotel. It's the old historic St.Louis Union Station, completely renovated into the Hyatt Regency and a mall. Very cool!
Okay- so I'm a dorky tourist!
This is the keynote speaker Dr. Elizabeth Thiele sharing her research on seizures. She was very very good!
No comments:
Post a Comment