


The blog was developed for our family and friends and for our extended Angelman Syndrome family. We hope you enjoy keeping up on the episodes of the Evans family. There are useful links and plenty of blogs and videos on AS for anyone looking for more information. You might have to look at older posts in the archives to find pictures and videos of Chance. Feel free to email Heather directly at heather.a.evans@comcast.net if you want any information on Angelman Syndrome.





After their part of the production, the kids filed off the stage... all except for Cannon! He stood there, waiting for specific instructions from his teacher to get off the stage. Too cute!








This video is Susan, her husband and Ryan sharing information on Angelman Syndrome. I hope you find it informative.
Rob and I had an absolutely AWESOME time at the Angelman Syndrome Conference in St.Louis. Thank you to my mom, Aunt Dar, and Aunt Deb for the enormous task of watching the boys for us while we were gone. Thank you to our church families at IBC, HPCC and Wildwood for your financial support, prayer support, and meals! And thank you to all our friends for your support and prayers. We learned so much about ourselves as parents/caregivers, and we learned a TON about Chance. We believe he is so much more capable than we initially thought and we're excited to see how his life unfolds. We were encouraged by the hundreds of families and angels we met there. It was really emotional for us to meet other angels. Rob and I also enjoyed some LONG overdue alone time. We hope to make the trip to the conference every two years to continue to learn, but more importantly to see our new extended family!



Okay- so I'm a dorky tourist!
This is the keynote speaker Dr. Elizabeth Thiele sharing her research on seizures. She was very very good!
I know, I know... it's summer, so how can it be his first day of Kindergarten? Well, Chance is part of the Extended School Year program for special needs and it just so happened that his first day of Kindergarten falls in July. He did GREAT! So much better than I expected. I guess I was just a nervous ninny, but his new teacher, Ms.Ginnie said he did better than she expected. Chance was so excited to see the bus coming, so that was a relief. And Ms.Ginnie was at the door when the bus pulled up to school, so he recognized her and was instantly at ease. I think we're going to have a good year!

He was so excited to get on the bus, he was pulling on my arm!