Our Future Worship Leader!

Cannon has definitely inherited his Mommy's musical nature. He loves to play any instrument he can get his hands on, and he REALLY loves to sing. Since all I ever have on the radio is Christian music, he's learning the songs and singing along. Nothing like hearing your three year old singing his little heart out about Jesus. Anyways - recently I was asked to learn a song called Ocean's Will Part to sing as an offering for church and to sing with the band I sing with. So I played it a lot to practice and Cannon came to affectionately call it "Mommy's song". Today I put my CD on and went into my room to do some work while he played with his matchbox cars in the living room. Next thing I know I hear the joyful sounds of him singing along to the song. I knew he knew some of the words, but this time he knew them all! And not only that but he was lifting his hand in praise. It was so cute I had to capture it on video. Take a look!


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Colin's Sucker!

My little man is just that, a little man. Hard to believe he's going on 17 months already. I remember bringing him home like it was yesterday. It's simply sad how fast the time goes by when they are this little. I just ADORE all three of my boys, but since Colin is my last baby, I can't help but think he's just the cutest EVER! I love this little clip of him slurping on his lollipop and wandering around the house. He makes even walking look cute!


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Chance's Communication Practice

Typically each night, or at least several times a week, we sit down with Chance and work on his communication. We just recently updated his communication board, so we spent some time helping him get familiar with where everything was on the board. Clearly you can see in these two videos that Chance knows his stuff! He loves to work for lotion! Crazy what motivates our angels!


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Angelman Syndrome Information

This video is Susan, her husband and Ryan sharing information on Angelman Syndrome. I hope you find it informative.

Jumpin Jeepers!!!

Cannon and Dominic are the best of buds and they sure did have a great time driving the jeeps around yesterday. I don't know, perhaps we should drop the legal driving age to 3?!!

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Sprinkler Time!

One our favorite things to do in the summer is play in the sprinkler. We seriously have quite a water bill each month, but it's worth it for the fun we have!

Angelman Syndrome Conference

Rob and I had an absolutely AWESOME time at the Angelman Syndrome Conference in St.Louis. Thank you to my mom, Aunt Dar, and Aunt Deb for the enormous task of watching the boys for us while we were gone. Thank you to our church families at IBC, HPCC and Wildwood for your financial support, prayer support, and meals! And thank you to all our friends for your support and prayers. We learned so much about ourselves as parents/caregivers, and we learned a TON about Chance. We believe he is so much more capable than we initially thought and we're excited to see how his life unfolds. We were encouraged by the hundreds of families and angels we met there. It was really emotional for us to meet other angels. Rob and I also enjoyed some LONG overdue alone time. We hope to make the trip to the conference every two years to continue to learn, but more importantly to see our new extended family!



During on of our lunch breaks, Rob did this crazy trampoline thing in the mall. He was a bit scared at first, but he settled in and was jumping REALLY high!
The next picture is our hotel. It's the old historic St.Louis Union Station, completely renovated into the Hyatt Regency and a mall. Very cool!

Okay- so I'm a dorky tourist!

This is the keynote speaker Dr. Elizabeth Thiele sharing her research on seizures. She was very very good!